Jesy Nelson Shares Twin Daughters’ Spinal Muscular Atrophy Diagnosis

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Jesy Nelson is opening up about her babies’ health.

Perrie Edwards’ mother noticed that her twin daughters, 8-month-old Ocean and Story, weren’t moving their legs as much as other babies their age. After tests, they were diagnosed with a serious muscle condition called Spinal Muscular Atrophy Type 1, which Perrie shares they are raising with her fiancé, Zion Foster.

Okay, so I was absolutely devastated watching Jesy’s Instagram video. She finally shared what’s been going on, and it broke my heart. Apparently, after months and months of worrying, endless doctor’s appointments, her little girls have been diagnosed with SMA type 1. And she explained it’s the most severe form of muscular disease a baby can get. Honestly, just hearing her say it… it’s just awful. I’m sending all my love and support, and I’m just trying to understand everything alongside her. It’s so heartbreaking.

Spinal Muscular Atrophy (SMA) is an inherited disease that leads to muscle weakness and loss, as explained by the Cleveland Clinic. There are five different types of SMA, and the most common, Type 1, affects around 60% of those with the condition. Babies with Type 1 SMA typically begin to have trouble breathing and swallowing shortly after birth.

The condition impacts all the body’s muscles – in the arms, legs, and even those used for breathing and swallowing. Over time, it destroys those muscles. Without treatment, a baby with this condition sadly won’t live past the age of two, she explained while crying.

Jesy Nelson’s daughters, born prematurely in March 2025 after a health scare for the singer, received a diagnosis that led to quick treatment at Great Ormond Street Hospital. Jesy explained that because time was critical, the hospital acted very rapidly.

I was so heartbroken to learn that this couple, who fell in love back in 2022 and got engaged just last September, was also told their precious daughters would face huge changes because of this terrible illness. It’s just devastating to think about what they’re all going through.

Jesy shared that doctors didn’t think the individuals would likely ever walk or regain control of their necks, meaning they would have long-term disabilities. She said their current focus is on providing treatment and hoping for positive results.

She expressed immense relief that her daughters had received the treatment they needed, saying she was incredibly thankful, as without it, their lives would be at risk.

She also acknowledged how her little girls’ diagnosis has changed her own life.

Honestly, it’s been non-stop hospital visits – it feels like I practically live there now. And it’s just… I’ve had to learn so much, so fast. Within two weeks of their diagnosis, I’ve become a total amateur nurse! I’m having to manage breathing machines and do all these medical things… things no mom should ever have to do for her child. It’s completely overwhelming, but I’m doing everything I can.

The singer of “Love Me Like You” revealed that the last few months have been incredibly difficult, calling it “the most heartbreaking time of my life.” She explained that she’s mourning the future she imagined for herself and her children.

She expressed gratitude that her daughters were still with her and receiving treatment. She’s hopeful they’ll overcome their challenges and achieve amazing things with the support they need.

The mother of two decided to share her daughters’ health news because she wanted to raise awareness about the condition and emphasize how crucial early detection is.

Jesy hopes that by sharing her experiences and the warning signs, she can make a positive difference and help others.

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2026-01-04 23:47